Searching for Music – The Musical Road

I live in movement, and my kids know rhythms and notes, especially drums call me. Time has been taken away by many medical appointments. I sought mindful activities, from guided meditations to nature walks, art activities, and prayer. I needed to move at times, and when my body failed, I used the car to guide me to places such as the “musical road” in Lancaster, California.

We have done this with my children, slow down at 50 mph, drive, roll down the windows, and listen to William Tell Overture. We drove around and around, laughing again and again. I needed to release energy and laugh, so I went. It was a moment between the music and me.

I felt the notes travel through my veins and tickle underneath my skin. Scleroderma affects tissues, skin, muscles, and organs. There is no cure, and one may only be able to slow it down, but that is it. It was a spiritual experience to feel each note underneath the skin, writing within me, imprinting – as if there were trying to combat my autoimmune cells and compose a new melody. Trombones, violins, …I can feel the symphony within. And drums. I didn’t know if they were in the original symphony…but I added them in my imagination, for music and colors can play within us in all sorts of ways, the music within my body.